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Please check out our new headlines page at: https://www.patterson-net.org/headlines/

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PNP Jan 2019 Update

Coming soon, please check back later.

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Q4 2018 Update From the PNP

Seasons greetings everyone!

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As 2018 comes to a close some changes are coming to the PNP to make it better than ever. We are in the process of testing those changes to make sure everything runs smoothly. If you have anything you’d like to see on the site, or any events you would like us to include on our calendar please let us know by making a comment on this post, or by sending an email to outreach@patterson-net.org .

In the meantime, we’ve created a new page that will bring you news headlines from SCI groups around the Bay Area.  Please come take a look at our new page at https://patterson-net.org/headlines .  The headlines are updated hourly,  Please tell us what you think about the headlines feature.  Is it useful? If you think of another site we should be reporting on, or any that should be removed, please let us know.

Starting in 2019 we at the Patterson Network are changing the way we provide information and interact with all of you. One of Richard Patterson’s goals for this project was to improve and enable people to communicate, chat, provide peer support, all over, all by using the internet.  According to the topic we will be discussing at any given time, we are requesting quotes, pictures, experiences or anything that will be a unique contribution from our community. Please share any topics you would like to see included in our online publication by contacting us at outreach@patterson-net.org .

We at the Patterson Network would like to extend our gratitude to everyone who subscribe, participates, and contributes to our site. We wish each and everyone of you a new year full of love, hope, prosperity, and joy. Thank you for supporting Richard Patterson’s vision of expanding support to everyone who needs it regardless of where they are.

Cheers to a wonderful 2019!

The Patterson Network

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Sept Update From the PNP

News from the PNP

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September is Spinal Cord Injury/Disease Awareness Month!

Commit yourself to creating awareness and educating your family, friends, and community around prevention, and the effects of spinal cord injury/disease.

Advocate for resources and get involved with organizations that assist those with spinal cord injuries/disease, and other disabilities.

Perspectives in Assistive Technology prepares for its 13th year

David Jaffe, who teaches “Perspectives in Assistive Technology” at Stanford University, is soliciting student project ideas from the community for the course starting this January. The course teaches students about the needs of the disabled community, and about how to take an identified need and solve it with a new invention. Each year, the course starts off with a number of project suggestions, presented by other students, health care professionals, members of the disabled community, as well as friends and family members. To read more about how you can contribute to this wonderful program, check out the official class web site at: http://engr110.stanford.edu/

Introducing the Bay Area Association of Disabled Sailors

The Bay Area Association of Disabled Sailors (BAADS) seeks to make all aspects of sailing accessible. To fulfill this mission, they offer weekly small boat sailing, keelboat sailing, and Veterans sailing out of South Beach Marina, adjacent to AT&T Park. In addition to their weekly sailing programs, BAADS hosts and participates in a variety of regattas and informal races both locally and internationally. To find out about racing opportunities, visit their race page. To learn more about how you can participate, read more about BAADS at http://www.baads.org/

Free information and support from the Christopher and Dana Reeve Foundation

Whether you are newly injured or a long time SCI survivor, this guide has something for you.

The Christopher and Dana Reeve Foundation has created a free comprehensive guide that is an essential tool for everyone living with or impacted by paralysis.

You can download copies to your phone, tablet, e-reader or computer, and you can request hard copies be shipped to you. The Paralysis Resource Guide third edition is currently available in print – English or Spanish. Click here to download your own copy.

How to Hear (and delete) Google Home and Amazon Alexa Recordings

The invention of voice controlled assistants has been a boon to the disabled, allowing us to independently control our environment through voice commands. Some people are reluctant to embrace this technology because of privacy issues. The main privacy issue is that these devices sometimes hear and record a lot more than we think. They can record every sound in their proximity, including private discussions about your health and the voices of your children or grandchildren playing nearby. The idea of some unknown person at one of these companies listening to you and your family can be creepy at best.

Now there is a way to hear what’s been recorded by these devices and you can even delete any recordings that have been saved on the Google and Amazon servers. Here’s how to do that:

Google Home: https://pattnet.us/2wW3NEY

Amazon Alexa: https://pattnet.us/2wPI4PS

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Celebration of Life Services for Annamarie Moreno

Kindness, Hope, & Love
My Beautiful Friend Annamarie Moreno

A photo of Annamarie Morino (on the right) and Ligia Andrade Zuniga (on the left)

Annamarie Morino (right) and Ligia Andrade Zuniga (left)

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I’m not really sure how it was that I was in touch with Annamarie, whether it was an email or phone call requesting I visit her, or just in my rounds on the 1st floor of the rehab department in the Santa Clara Valley Medical Center. You see, I sustained a spinal cord injury in 2009 in which the Peer Support program was invaluable and  influential in my physical and emotional recovery. I joined the program as a Peer Supporter because I wanted to provide the same hope that I received after my SCI to other people experiencing the same kind of injury. So did Annamarie.

The day I met Annamarie I remember rolling into a dimly lit hospital room with mixed emotions, excited to share my story and support with someone who had just experienced the same thing I had, and saddened by the same idea. A tall slender woman with long dark hair and a very calm demeanor greeted me. She looked very tired and sad. She stood up and smiled, she introduced herself, and if I remember correctly as Annamarie’s aunt. I introduced myself and explained what my purpose was for the visit. She then introduced me to Annamarie, a young woman with long dark hair, big expressive eyes, and a beautiful smile. “Hi, my name is Ligia,” I said. “Hi, I am Annamarie,” she replied, and that is where this friendship began. I proceeded to tell her all about my injury and my experience right before, during the medical process in the hospital, and how my life evolved thereafter leaving the hospital. I asked her about her life, about who she was, and what brought her to this place. after all, we are all just human beings living life connected by this unfortunate circumstance.She was very forthcoming, very trusting, but most of all very kind. We talked for over an hour like we had been friends for years. another one of the reasons I knew that our friendship would flourish was that she asked me about my shoes. That day I was wearing my bright yellow wedges that made my legs sit tall and proud even though they had no life in them. The brightness of the yellow attracted sunlight and positivity. “When will I be able to wear shoes like that again?” she asked. “You’re going to be just fine,”I replied. Our friendship was meant to be.

I went to visit her a couple more times after the initial visit, but discharged time came and I just waited to see her again at one of the Peer Support meetings, or chat with her over the phone when she was home. Over the years we’ve shared conversations in person, via Skype, over the phone, and via text message. Our friendship developed quickly being that it was so easy to be friends with such a loving and amazing person. Our children were around the same ages at the points of our injuries which exchanging parenting tips brought us even closer. Annamarie and I had planned to start a peer group for the young and/or adult children of individuals with SCI to share their experiences, their fears, anxieties, high points, and low point of this journey with their parents and how it has affected them. Unfortunately, we kept postponing our beginning date, and it never happened. Annamarie loved her children, they were her life. There was nothing she wouldn’t do for them, and the ultimate purpose of acceptance and moving forward was for those two kids. This was the fountain this passion she had around our project overflowed from.

Although I have many memories of Annamarie,  of many conversations, many laughs, many tears, my most favorite memory was when we went to a concert for my birthday with my mom, and my sister-in-law. Because Annamarie’s birthday was around the same time, we made it a celebration for both. When we got to the venue we couldn’t find each other. I think we were both going around in circles, and as soon as one of us would get to a certain point, the other one would have just left. This happened over and over for about half an hour. Finally! We found each other! I remember Annamarie rolling through the door with her bright pink lipstick radiating from her gigantic smile and her beautiful bright pink cardigan. We had so much fun that night, we laughed so hard we got a headache, lost our voices, for that moment in time life was good.

Supporting one another whether it be through a formalized program like the program we were affiliated with, or just casually meeting people, the power of human connection is what allows our souls, our spirits to recover from tragedy and loss. It is not a coincidence that she and I became such good friends; at that time in my life I needed some light. My life became that much more colorful and vibrant having her as a friend, We meet so many people throughout our lives, some come and go, but some leave a permanent imprint. That is what Annamarie left in my life, a permanent imprint of kindness, hope, perseverance, and love. You see, I didn’t just help her in her recovery; she has also helped me in mine. She always thanked me for guiding her through this, but she also guided me at times. I will miss my friend Annamarie Moreno.

“Don’t walk behind me, I may not lead. Don’t walk in front of me, I may not follow. Just walk beside me, and be my friend.”-Albert Camus

Annamarie Moreno, age 33, passed away on July 12, 2018. Annamarie was a woman of strong faith and love for God. She loved singing, dancing, sewing and spending time with her family and friends. She was a beloved Mother, Daughter, Granddaughter, Sister, Aunt, cousin and a friend to many. She will be remembered for her beautiful smile and love she had for people. She will be greatly missed by all who knew her.

Annamarie was a SCI peer supporter at Santa Clara Valley Medical Center where she spent her time following her spinal cord injury in 2012 and had a beautiful smile from day one.

Family and Friends are invited to attend:

Celebration of Life Services
July 20, 2018 at 3pm
Mt. Pleasant Christian Center
3535 Clayton Rd.
San Jose, Ca 95127

Reception immediately following
St. John Vianney Community Center
4600 Hyland Rd.
San Jose, Ca 95127

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